Raising awareness of Usher syndrome with Jo Milne
Northumbria Healthcare teamed up with Jo Milne to create an educational film which will help to raise awareness about the condition both within the NHS and the wider public.
The film, which gives viewers an insight into what life is like for Jo as well as hearing from medical professionals, was produced by Northumbria Healthcare’s charity, Bright, with funding from NHS Charities Together.
Usher syndrome is a genetic condition that affects both hearing and sight. Jo was diagnosed as profoundly deaf at 16 months old, but it wasn’t until she was in her teens that she was found to have Usher syndrome and only at 30 that she was registered as severely sight-impaired.
In 2014, she underwent a cochlear implant operation which gave her the ability to hear for the first time. Her story was picked up by the world’s media and the clip of her implants being turned on was viewed by well over 10 million people.
https://www.northumbria.nhs.uk..../media-centre/news-a
